Woodpecker

We're having fun trying to get to grips with the garden. Lots of lovely birds visit, but we are really happy to have a pair of woodpeckers call in and eat some of the food we leave out.

International ME Awareness Day 2010

The last few years my life has changed a lot. Since my parents died in 1997 we have had to battle with legal stuff, but the end is possibly in sight now over all that.

We completed buying a new (to us) house in December 2009, and the plans for an extension have just gone in to the City Planners. Meanwhile we are trying to get to grips with what was once a beautiful garden, but was very overgrown and wild with brambles and ivy. We are fortunate to be able to still live in our old home while the renovation and extension work is going on. I really don't think I could have taken on a project like this otherwise.

But the biggest change happened just two days ago on 10th May. Our younger daughter gave birth to twin boys. Yesterday we saw them for the first time - two tiny little babies. Our grandsons.

So I am thinking at this time of all of those people with ME/CFS who have not had children themselves, and so are deprived of the happiness that I have right now.

Most of what is written about ME/CFS research seems to be about getting folks back to work, coping, blah blah. But I don't recall seeing much (anything?) about the loss of personal lives.

I was lucky in that I already had my two daughters when I became ill.

After returning to the work place part time back in 1988, I became ill in March 1992. I missed a lot of my girls growing up, they had to help me rather then me helping them. But they have stuck by me, and have always helped as much as possible, both were godsends during my parents' decline and final illnesses.

But I know of so many people with this DD (Damned Disease) who live alone, who cannot get out to meet with potential partners and friends, who have to face the possibility of never sharing their lives with anyone.

Meanwhile we are all left with clinics run on psycho-social theories that do not address the effects of this illness even in psycho-social terms.

I delight to have the joy of twin grandsons, but I despair that many of my fellow patients will be deprived of this joy in their lives.

It's time the MRC and NICE woke up to the fact that around 250,000 people in the UK are not only lost to the work place, but also are losing out on one of the most important aspects of their lives - their family lives.

Blogging for ME/CFS Awareness

Keyhole Gardens

I saw this link on a gardening forum, and thought it was a lovely and useful idea.

Making a Keyhole Garden in Lesotho from Send a Cow on Vimeo.

We bought a house

Been a long time since I posted here. We finally bought a house, purchase was completed on 11 December and we've been trying to get various stuff sorted out ever since.

The garden is quite large for a semi round here, and has some lovely shrubs - quince in the front garden, magnolia, camellia, azaleas in the back.

Quince flowers

We've been tackling the brambles in the back garden, and also the buddleias. I chopped down most of a buddleia yesterday - or at least pruned it severely, and began trying to prune some of the roses. Here's a picture of the garden from the back bedroom, taken a while ago, and before we began work on the pruning etc.

Have my favourite visitor here again!

Here's Brodie!

We're going through some interesting times right now, as we offered on a 2 bedroom bungalow yesterday (subject to survey) and heard soon after 5pm that our offer has been accepted.

I am feeling fairly mixed up about it all, it will be hard to leave this house, say goodbye to our mini-Eden in the back yard...

But I have a friendly visitor staying with me. And he keeps me sane in times that feel a bit insane to me!