tag:blogger.com,1999:blog-10847768.post6695757118982739192..comments2024-02-02T17:03:20.258+00:00Comments on Liverpool Leftovers: International ME/CFS Day 2007Maggiehttp://www.blogger.com/profile/13630530599678517169noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-10847768.post-6747790167180609222008-01-14T05:05:00.000+00:002008-01-14T05:05:00.000+00:00Hi, just popping in to say that I like your blog a...Hi, just popping in to say that I like your blog and have one written to encourage women who suffer from chronic illness. I have fibromyalgia, chronic fatigue syndrome and possibly ME or Lupus. I should find out what it is this Thursday.<BR/><BR/>Blessings and God's comfort,<BR/><BR/>GlenysGlenyshttps://www.blogger.com/profile/15883271264938265846noreply@blogger.comtag:blogger.com,1999:blog-10847768.post-88692950334610466872008-01-07T14:28:00.000+00:002008-01-07T14:28:00.000+00:00hihi< I have fibermyalger think thats how its spelt, and have just started knitting again and boy is it slow going, knitting matinee coat for daughter who is having a baby in July, by the time I finish though might be ready for grt grandchild never mind at least I tried, so nice to find a blogg with people in the same situation.I live in Abersoch.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10847768.post-69310910210729453752007-05-19T09:54:00.000+01:002007-05-19T09:54:00.000+01:00Beautiful flowers Maggie - same colour as the sock...Beautiful flowers Maggie - same colour as the socks! You can go gardening in them. Hope all the knitting (and all those new books!) are keeping the MS-blues at bay ...littlemithihttps://www.blogger.com/profile/05072027337598940807noreply@blogger.comtag:blogger.com,1999:blog-10847768.post-83309567108374685242007-05-16T22:54:00.000+01:002007-05-16T22:54:00.000+01:00What a beautiful color for those socks, looks just...What a beautiful color for those socks, looks just like your flower!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10847768.post-32965473006619864092007-05-16T20:27:00.000+01:002007-05-16T20:27:00.000+01:00Maggie,your socks are looking great and I do like ...Maggie,<BR/>your socks are looking great and I do like that colour.Mary Annehttps://www.blogger.com/profile/15941689051872189415noreply@blogger.comtag:blogger.com,1999:blog-10847768.post-30125539621908132842007-05-16T12:49:00.000+01:002007-05-16T12:49:00.000+01:00This comment has been removed by a blog administrator.david santoshttps://www.blogger.com/profile/08976825493652779441noreply@blogger.comtag:blogger.com,1999:blog-10847768.post-2970534739099440952007-05-15T22:19:00.000+01:002007-05-15T22:19:00.000+01:00Alas, ME/CFS simply isn't exciting.Only very rare ...Alas, ME/CFS simply <I>isn't</I> exciting.<BR/><BR/>Only very rare and unusual cases die because of it, and there are no shocking visible symptoms. There are no lumps or rashes or other semi-reliable indicators you can "look out for". As Cusp says, we're not about to die, and we're not battling or being "inspiring" (partly because we're not about to die).<BR/><BR/>There's also the amazingly high proportion of fakers and hypochondriacs that march under the ME banner, plus on the other side of the coin, those who actually have undiagnosed Lyme or MS or coeliacs or whatever. It'll never be a cohesive group, largely because we don't all have the same illness or even the same symptoms. All we have in common is this inaccurate and ill-defined label, stuck on us by a medical profession who don't really know what's going on with us. How's that going to educate or interest The Public?<BR/><BR/>/rantMaryhttps://www.blogger.com/profile/11639094548415759560noreply@blogger.comtag:blogger.com,1999:blog-10847768.post-19417134985749099242007-05-15T15:50:00.000+01:002007-05-15T15:50:00.000+01:00Great flower ---some kind of anemone or of that fa...Great flower ---some kind of anemone or of that family?<BR/><BR/>ME/CFS day was, as usual, a bit of a damp squib --hardly surprising given the weather ;-). I wonder what it takes to get people together and really interested. The problem with ME/CFS to outsiders, I think, is that it doesn't appear to be tragic, life threatening or make you look brave and pioneering. Its perceieved as something that makes you a bit of a misery and a party-pooper ('We all get tired')<BR/><BR/>On the other hand, we should appreciate the efforts that some PWME make to get informative publicity, funds, political changes out in the world. Even within the 'ME world' there's enough back-biting, resentment and quarrelling to make a pack of wolves look shy ---- you only have to read some of the Newsgroups.<BR/><BR/>Fighting with each other will never help any of us. Sticking together and changing the general perception of ME might.Cusphttps://www.blogger.com/profile/10717783581169397585noreply@blogger.comtag:blogger.com,1999:blog-10847768.post-80908997283098135582007-05-14T23:13:00.000+01:002007-05-14T23:13:00.000+01:00ME/CFS Day, who'd've thunk it. No one even got me ...ME/CFS Day, who'd've thunk it. No one even got me a card. *sobs*<BR/><BR/>The sock is looking good. I haven't tried the round variety of knitting voodoo yet. One stick per hand is plenty!Maryhttps://www.blogger.com/profile/11639094548415759560noreply@blogger.com